The Barry J. Maron Hypertrophic Cardiomyopathy Center at Kalra Hospital SRCNC Pvt. Ltd., unveiled on September 27, 2014 at the Le Meridien in New Delhi by Dr. Barry J. Maron (of the Minneapolis Heart Institute Foundation), is India’s first hypertrophic cardiomyopathy (HCM) “center of excellence.” The center’s mission is to provide state-of-the-art care to HCM patients in India, comparable to that provided to such patients in the West. As discussed by Drs. Barry Maron and Ankur Kalra in their European Heart Journal article, “at this time, expertise in HCM is underdeveloped and there are no established multidisciplinary centres in India specifically designed for the systematic assessment of patients with this disease.**” The center at Kalra Hospital has been established in recognition of this deficit.
The mission of the HCM center at Kalra will be to appropriately manage patients with this complex disease, offering advanced cardiovascular imaging (including cardiac magnetic resonance imaging), clinic cardiac electrophysiology for implantable cardioverter-defibrillator, and screening and genetic testing for patients’ family members where necessary and indicated. The HCM center at Kalra, under Dr. Maron’s guidance, has worked in collaboration with Dr. Maron’s surgical team to identify and train select few cardiovascular surgeons in India in surgical septal myectomy, establish a nationwide referral system where patients with this complex disease can get evaluated by cardiovascular experts at Kalra dedicated to HCM, and also diligently follow these patients longitudinally on an annual basis, and establish a nationwide registry as part of this programme dedicated to HCM.
As Drs. Barry Maron and Ankur Kalra have written, “HCM has not been a priority in India, and these patients have been underserved. Solutions are challenging and will take time, but can be best achieved by emphasizing HCM-related education and training, and also by developing multidisciplinary programmes dedicated to this disease.” Kalra Hospital Sri Ram Cardio-thoracic and Neurosciences Centre (SRCNC) Pvt. Ltd. has taken the first step in this direction, and will continually strive to make a difference in the lives of HCM patients in India.
Ankur Kalra, MD, FACP, FACC is the director of the Barry J. Maron Hypertrophic Cardiomyopathy Center at Kalra Hospital SRCNC Pvt. Ltd. Dr. Ankur Kalra is a board-certified cardiologist in the United States, and currently a clinical and research fellow in the Division of Interventional Cardiology at Beth Israel Deaconess Medical Center, and a clinical fellow in Medicine at Harvard Medical School in Boston, MA.
As “enhancing medical expertise in HCM requires commitment and willingness to invest in time and money, as well as development of an expanded and accessible medical insurance programme (with adequate reimbursement provisions),” Kalra Hospital invites philanthropic individuals, financial institutions, and organizations at large to donate generously toward this initiative, and collaborate with us for developing a state-of-the-art HCM center and national registry of HCM patients.
**Maron BJ, Kalra A. Hypertrophic cardiomyopathy in the developing world: focus on India. Eur Heart J. 2014;35(36):2492-5.
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